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Educate Yourself
Educate Yourself
Once you are diagnosed, take time to learn about your condition and what to expect. Becoming informed can help you feel more confident and prepared as you navigate care. Tick-borne diseases can be complex and will present differently from person to person.
Working with a healthcare provider who listens carefully, considers your symptoms, and is open to discussion is an important part of the process. The best outcomes are often achieved through shared decision-making between you and your provider. If needed and able, consider seeking care from a provider with additional experience or interest in tick-borne diseases.
Use the resources and tips below to get started. Organizations such as Lymedisease.org offer tools, including a searchable directory, to help locate clinicians familiar with Lyme disease and other tick-borne illnesses.
Be an Advocate
Be an Advocate
Because tick-borne diseases are complex, you will need to advocate for yourself. Educate yourself using the resources recommended on this site and through support groups and experts in the field. There can be differing perspectives on how these conditions are managed and treated. Sharing helpful information and resources with your healthcare provider can also support more informed, collaborative care.
Don't Give Up
Don't Give Up
It’s not uncommon to feel alone or misunderstood when living with a tick-borne disease. Many of these conditions are not visible, and others may not fully understand the impact they can have on the body, mind, and overall well-being.
Sharing information about your condition with family and friends can help build understanding and support. If you’re not finding the support you need close to home, consider connecting with others through online communities or virtual support groups.
Whatever you do, don't give up. You are not alone, and support is available.
Join a Support Group
Join a Support Group
There are a variety of support groups available. If you try one and don't like it, try another one. They are different, so try them out until you find the one that is right for you. The Global Lyme Alliance offers a tool to find if there is an in-person support group near you. Virtual options are provided here.
Check Out Facebook Groups
Check Out Facebook Groups
There are Facebook group pages for specific tick-borne diseases and are a place where you can ask questions, have conversations, or just read about other people's experiences. These can help you navigate your diagnosis, symptoms, management, and treatment options. Because there are many, check out several to see which ones are the best fit for you. Here are a few groups to get you started.
Additional Resources for Lyme & AGS
Additional Resources for Lyme & AGS
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