We have conducted surveys and interviews with over 1000 adults and caregivers of children with diagnosed tick-borne diseases to learn about their experiences living with these diseases.  Dr. Hall, Founder of Ticks in Virginia,  also regularly engages in conversations during outreach and has talked with thousands of people with tick-borne diseases in Virginia.  Results are applied in practice and shared during presentations, used to create resources, and inform new studies to advance public health education and clinical practice. 

Over 400 adults and parents of children with tick-borne disease participated in a mixed-methods study involving surveys and interviews on their experiences with healthcare providers related to the diagnosis, management, and treatment of their condition. Fifteen recommendations were developed through a thematic analysis of participants' responses.  Recommendations are highlighted on the Resources for Healthcare Providers page.

Employees with a tick-borne disease experience symptoms that impact their ability to go to work (absenteeism), be fully present while at work (presenteeism), and/or be able to perform their job responsibilities at their highest potential (productivity).  From a study with over 400 adults, the most common symptoms for all TBDs combined were fatigue & tiredness, upset stomach & nausea, joint pain & swelling, disturbed sleep, and headaches.  

In some cases, employees were fired, forced to reduce hours or quit, or had to change professions because of the severity of their symptoms (all TBDs) or because of allergic reactions resulting from workplace exposures (Alpha-gal Syndrome).  

Employers, particularly those with employees working in high-risk occupations and workplaces located in tick-endemic regions, need to recognize the risk of tick bites for their employees (both on and off the job) and consider implementing programs, practices, and policies to support employees who have a tick-borne disease.  Learn more on the Resources for Employers page.